About

Noah_FootballNoah Lamey has always been a typical, very active, athletic boy! At 9 years old, he was captain and quarterback of his 80lb varsity Prospect Park Termite football team. He played several positions for the 8U Norwood Tournament baseball team this spring, and this past winter, he was the point guard and MVP of his 10U Norwood AC Basketball team. In addition to organized sports, Noah also enjoys golfing, skiing, swimming and most of all, playing with his brother and friends!

In late August 2013, Noah began vomiting and complaining of extreme fatigue and that his “belly hurt”. Noah’s appetite slowly decreased to the point of not eating or drinking at all. This was very untypical of Noah. These symptoms, that presented as a GI virus and lasted for several days, prompted Noah’s parents to take him to the pediatrician. Later that night when his symptoms got worse, he was taken to the Children’s Hospital of Philadelphia (CHOP) ER, and treated with IV fluids for dehydration. Noah was admitted to the general pediatric floor for treatment of a suspected GI virus. The following day, which should have been Noah’s first full day of 4th grade, he was discharged to home.

Noah_ClassFive days later, September 9th, was day 13 of symptoms of a suspected virus that had him continuously vomiting and would not allow him to eat, drink or function as a normal 9 year old should. In addition, Noah began having difficulty breathing and complained of severe pain in his belly. Noah was again taken to the pediatrician’s office at which time he was referred back to the CHOP ER. This time, Noah received various other tests including a chest x-ray, abdominal ultrasound, and was again admitted to the general pediatric floor at CHOP.

The morning of September 10, 2013, Noah underwent an echocardiogram (ultrasound of the heart) and was immediately diagnosed with Dilated Cardiomyopathy (DCM). DCM is a condition in which the heart becomes weakened and enlarged and cannot pump blood efficiently. His heart is severely depressed and is not pumping efficiently enough to allow him to survive without intervention. This news was devastating to not only his Mom and Dad, but to his older brothers, Nicholas, 11, and Robby as well.

Noah’s belly pain worsened and was localized to his liver, which was distended, and by mid-morning his breathing became severely difficult. Signs of heart failure were now extremely evident. Noah was transferred to the Cardiac Intensive Care Unit (CICU), for treatment of heart failure with multiple IV medications. The cardiologists informed Noah’s family of what to expect with his condition, which ranged from being medically managed to mechanical heart devices to a heart transplant.

Eventually, Noah stabilized enough to be transferred to the Cardiac Care Unit (CCU), where he lived for 29 days with his heart’s function dependent on IV and oral medications. Various tests have shown that Noah’s heart has not remodeled or corrected with the medications and the likelihood of it doing so is improbable. His heart remains severely depressed and dilated and is functioning with dangerously low cardiac output, allowing very little room for decreased function.

 

Noah received his heart transplant on his birthday 6/7/14. We are home recovering from the surgery. Please pray for the donor family.

See the updates and Noah’s progress by creating an account on Care Pages:
www.carepages.com/carepages/Heart_for_Noah

Family Photo

When word of Noah’s condition got out to family and friends, they immediately jumped into action to help lessen the burden of his new reality.

For additional information about donating, please contact the
Heart4Noah Committee at
Heart4Noah@gmail.com